The Malcolm Whales Foundation has gone into partnership with Climbing Out. Climbing out is a registered charity working with young people aged between 18-30yrs facing life changing injury or illness. The charity runs 5 day residential outdoor activity programmes that aim to help rebuild confidence and self-esteem post injury or illness.
Climbing Out have created close links with the Teenage Cancer Trust and now offer week long programmes to teenagers that have been affected by cancer. The Malcolm Whales Foundation was created to support young people affected by Cancer. The partnership is one we hope to develop over the coming years.
In May of 2015 The Malcolm Whales Foundation donated £8,000 to Climbing Out and sponsored one of these residential weeks. The May half programme supported 16 young people, all who had been affected by cancer. The purpose of the week was to enable the young people to regain their confidence, self-esteem and to give them the opportunity to achieve despite the challenges they face.
During the week Damien Whales went to the Lake District to support the programme. During his time in the Lake District, he witnessed incredible achievements in some incredibly physically and mentally demanding circumstances. The young people face serious challenges on a daily basis, watching them work together as they solved problems and climbed waterfalls amongst other things, is one of the most humbling experiences Damien Whales has been involved with.
Damien hopes that this will be the first of many years of support that The Malcolm Whales Foundation can provide.
Update 2018 - this has now become an annual partnership, with the donation at £12,500 a year!
Sailability - Grafam Water
In July of 2015, The Malcolm Whales Foundation was approached to support Sailability with a donation to assist with the building of their new cabin project. Sailability is a charity based at Grafham Water, near Huntingdon, Cambridgeshire. Their objective is simply to enable people with many types of disability to enjoy the thrill of sailing.
Damien went to visit them at Grafham water during the summer. The programme provides a positive opportunity for people that face serious difficulties on a daily basis, a weekly opportunity to challenge themselves and enjoy outdoor pursuits . Many of their members are sadly affected by different forms of Cancer. The Malcolm Whales Foundation have donated £2500 to help support the building of improved facilities.
Following on from the success of the Dorset Walk 2016, I was busy sharing the event on social media. Whilst flicking through twitter I stumbled across a charity called Edgars Gift. I immediately made contact with Neil Bradman the founder of the charity.
Whilst we were talking through what each charity was about, it became clear there were some incredible similarities between the two charities. Edgars Gift was created following the loss of a loved one. It now brings positives to people’s lives who have sadly been affected by cancer.
Most bizarrely Edgars Gift is based in Leicestershire, where my Dad lived. From the village, where my Dad lived. It seems impossible that over the years Neil and his family wouldn’t have crossed paths at some stage with my family.
In 2016, Edgars Gift were looking for a donation to help fund a holiday caravan. They wanted to create a place where families affected by cancer would have the opportunity to get away and have a family holiday.
We felt that this was the type of project that was perfect for us to support. As result we donated the final £4,000 for their caravan. At the point of writing this the caravan has just been purchased in Mablethorpe, on the Lincolnshire coast. The first holidays being planned for 2017.
We look forward to building further partnerships with Neil and his team in the future.
Update 2018 - this partnership has now become an annual partnership. TMWF now sponsors the 6 weeks of the school holidays at the caravan. Alongside a donation for wishes each year. Our current annual sponsoship stands at £2500.
The George Pantziarka TP53 Trust supports people with Li Fraumeni Syndrome and other TP53 related disorders.
It aims to:
• Increase understanding of the condition among sufferers and their families
• To support individuals and families with the condition
• To increase awareness of the condition among doctors and to increase the rate of TP53 testing
• To promote research into the condition and to look for treatments
• To foster a feeling of community and to end the isolation that currently exists amongst sufferers and their families
The trust has been set up by the Pantziarka family in memory of George Pantziarka 28.03.93 - 25.04.11
For more information, advice and support please visit http://www.tp53.co.uk/
The Harry Johnson Trust was established in November 2014 following the death of seven year old Harry in July of that year.
Harry died following a nine month fight with Double Hit Non-Hodgkins Lymphoma.
The trust offers help and support to children and teenagers who receive care from the Oncology Team at The Princess Royal Hospital in Shropshire.
May 2018 - Ryley Briston
This is the press realease:
A teenager who suffered a devastating bleed on the brain is on the road to recovery after receiving a new walking frame.
Ryley Briston, of Baston, was just 14-years-old when he collapsed following a football game with friends. That was in May 2016. Up until then, he had been a fit and healthy teenager who loved sport and played football for a local team and was a keen athlete. He also took part in athletics, football and rugby at his school at Bourne Grammar.Scans at Addenbrooke’s Hospital in Cambridge, revealed he had an AVM (Arteriovenous Malformation) in his brain which had haemorrhaged, causing a bleed.
To save his life, he underwent emergency surgery to stem the bleed and remove a large part of his skull.The brave teen was placed in an induced coma to allow his brain to recover and spent three months at Addenbrooke’s, where he had to relearn how to talk and eat.
His injury left him with long-term upper body dystonia, meaning he can’t walk very well and use his hands and arms effectively. He also uses an electronic communication system although his speech is improving.
And thanks to a donation of just over £1000 from The Malcolm Whales Foundation, a new Kaye walker has been purchased to help Ryley get back on his feet - quite literally.
His proud mum Mel said: “The more Ryley is on his feet the quicker his brain will develop new pathways giving him a better chance of recovery.
“Ryley has recently started a new school and already he has begun to walk to one lesson a day using his walker.
“Ryley is making huge progress in all areas relearning the skills many of us take for granted in daily life.
“The key to his progression is getting the right therapy and equipment to help him reach his full potential and his dream of walking again independently.”
Damien Whales, founder of the The Malcolm Whales Foundation said: “We are delighted that Ryley has made such amazing progress with his walker. When we were approached to support him, it was a very straightforward decision.
“We hope that the walker continues to make a big difference to Ryley and his family.”
January 2018 - Amelia Martin Fund
A piece from her justgiving page:
Amelia is my best friend. She is 41 years old. She has a 6 year old son and a loving husband. She has a rare tumour also found in children known as a grade 3 papillary Meningioma. Her tumour is growing rapidly and in an awkward direction and because of iits location in her brain is inoperable and untreatable with radiotherapy or chemotherapy. Already the tumour is affecting the muscles in her face, her sight and her hearing. Eventually it will kill her. In the last 4 years, Amelia has had 2 operations and radiotherapy on this tumour, and surgery to remove another smaller brain tumour. No further treatment exists for this type of rare tumour in the UK. However a clinic in Prague can offer Proton Beam Therapy and in some cases this has been shown to be successful. Prague have approved Amelia for treatment but the NHS have not approved her for funding.Because the tumour has grown 5 centimetres since November the clinic is advising that Amelia has the treatment urgently.
The money raised through Just Giving will fund Amelia's treatment abroad as well as any other treatment that she may need. Any money not spent on treatment and associated costs will be donated to cancer charities.
Amelia is the kindest, most positive person I have ever met. She is a much loved mum, wife, daughter and sister.She wants to fight this tumour so that she can watch her son grow up and be around him for as long as possible. So please help me to raise funds. Myself and her family would be so grateful. Thankyou.
"Thankyou to the person that suggested I email The Malcolm Whales foundation....all these emails are paying off! £500! Thankyou so much for you donation"
August 2018 - Woodlands Centre
We are really pleased to announce a new partnership for TMWF.
Working with the Woodlands Centre, the cancer ward at Hinchingbrooke hospital, the foundation will be contributing somewhere in the region of £10,000, to create a new garden area for patients and families to relax, whilst attending their appointments.
During recent meetings at Hinchingbrooke, it was also agreed that TMWF will not only fund the garden, but that the young people who have raised the money, will now put further hard yards in as they will be working hard to create the garden.
The pursuit for willing volunteers now begins!
July 2018 - The Malcolm Whales Sailability boat
Following on from the successful support of the Sailanility club house in 2015. The foundation was approached to buy a new Challenger Sailing boat to help people with life changing illnesses and injuries including but not exclusively cancer.
Having seen the amazing work that Sailability have put in over the past 3 years, further support was something we were very happy to pursue. We felt the longevity of a boat of this nature and the number of people that will be able to access the boat over hopefully the coming decades made the £7500 donation more than worthwhile.
On 30th August 'The Malcolm Whales' launched for first time. We are delighted to see the boat in action.